Time Hopping….Updates.

Seeing his small face and sweet smile is like taking a sledge hammer to the walls I’ve built. I have learned not to get your hopes up. To be optimistic. To pray. To believe. To never give up. To hold on and to stay strong, but never make an assumption. Life changes so quickly.

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People say all the time “I don’t know how you do it”. Truth is, I don’t have a choice. This is life for me. For us. Waking up, packing up, loading up, and driving. Only to wait and hope that they may know something new. It has become the norm in my life. Not easy, just normal. Chance was very young when he got his diagnosis. Things have just kept moving after that. Not to say life hasn’t been amazing but it just kept going. Life has a way of doing that. You wake up one day and it’s been four years. Familiar with the app “time hop”? Me too. Just this morning a picture from three years ago came up and it was of Chance. Small, still had baby fat on his cheeks, eating a donut in the hotel room the night before a surgery. It’s weird how that happens. Seeing something and going back in time. I remember each doctors appointment. Each visit, and every surgery. I try to push certain things into the back of my mind. Not as though they haven’t happened, but to make it less heart breaking. With each trip, and each surgery he becomes more agitated, more upset. It gets harder.

 

We are looking at number 15 in the very near future. It was supposed to be on the 29th of December, but it has been postponed until they get the new machines in. To give an update of all recent events, we’ve ran into some other seemingly “small” issues. After several kids in his class came down with the flu, the instant he ran a fever went to the local ER. No flu, no strep, everything was normal. A chest x-ray showed us a small lesion in his lung. Of course the first question was “how did this happen?” followed by “what do we do now?”. The answer was simple, find another doctor to answer them and so, we where on the road again. This time we found ourselves in Pensacola at the Numours Childrens Hospital.

 

 

 

Hands down, the most family oriented hospital I’ve ever been too. We felt safe and comfortable the moment we opened the car door. After meeting the doctor and running several tests, we where told that the “lesion” is easier explained as a hole. We where home bound. Happy, and hopeful that two weeks of medicine and a follow up would show that it is gone or at least shrinking. Fast forward, that’s been a month ago. Just got the call yesterday that it (the hole) is still there. I’m unaware of any details other than “it is still there”. They’ve asked that we come back. I’ll be leaving Sunday afternoon to make the drive back out. Obviously, I’m unsure of where that leaves us.

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Once these new findings are discussed we are still looking at the surgery for the 13th of January. In some way I feel like we’ve made no progress, other times I feel like we’re making leaps and bounds. There are so many new findings in the medical world every day. They have come up with a new treatment option and seem optimistic and genuinely hopeful that this will make a difference. Still no word on a “CURE” but hey, progress is progress. I appreciate all of the love, support, and prayers that have been sent up for Chance, and for us as a family. I ask you to continue your thoughts and prayers as we move forward in our journey.

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Diabetes. Find a cure.

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The greatest man I have ever known spent years suffering and my whole life I’ve wanted to make a difference. One of my greatest dreams is that one day, we will be a world free of diabetes and all of the pain it causes. Tomorrow is World Diabetes Day. If you have something blue, wear and support the cause. If you have a minute and aren’t informed, get informed. We are the future.

Diabetes is the common name for a range of conditions including diabetes mellitus type one and diabetes mellitus type two, diabetes insipidus and gestational diabetes. These are all conditions, which affect how the pancreas (an organ in the digestive system) secretes insulin or how the body reacts to this hormone. Depending on the type and severity, diabetes is controlled by dietary measures, weight loss, oral medication or injected or inhaled insulin. There is a wide range of short and long-term complications of diabetes including foot and eye problems and vascular diseases. It is estimated that one in three residents of the United States will develop diabetes at some point in their life.

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On December 20, 2006, the United Nations (UN) passed a resolution to designate November 14 as World Diabetes Day. The occasion aimed to raise awareness of diabetes, its prevention and complications and the care that people with the condition need. Governments, non-governmental organizations and private businesses are encouraged to increase awareness of the disease, particularly among the general population and the media. World Diabetes Day was first commemorated on November 14, 2007, and is observed annually.

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13th time’s the charm.

To My Hero,

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You are the most amazing person I’ve ever been blessed to know. You are my “sonshine” and you are my heart. The love between a mother and child is the purest love of all. I would give my last breathe just to say I love you. I will never give up hope nor will I ever lose faith. Together we will overcome anything that stands in the way. Becoming a Momma was and is my greatest accomplishment.

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Today may be just another day for everyone else. Today may seem like another day for every other parent but for us, today at 11am will be the 13th time I have sat and waited for someone to tell me “we’re all done” after they snatch you away from me. The 13th time I have sat calmly and watched you get ready while on the inside I’m battling with my emotions. If you ever read this, I want you to know how strong I’ve tried to be. I hope you know how big my faith is. One day this will be just another memory. Today it is a struggle we face everyday but someday soon it will be a small journey and a huge testimony. One day you will know what a miracle you are.

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I love you bigger than the ocean
and deeper than the sea.
You are the greatest part of me.

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Chance, I love you more than words. XoXo.
Love, Momma.

If you should find yourself reading this, please take a second to send up a prayer for my special boy today. He’s about to endure his 13th surgery in an effort to open his airway for better breathing. I stand firm in my faith and The Lord is going to deliver my child from this. Thank you in advance from our family to yours!