Time Hopping….Updates.

Seeing his small face and sweet smile is like taking a sledge hammer to the walls I’ve built. I have learned not to get your hopes up. To be optimistic. To pray. To believe. To never give up. To hold on and to stay strong, but never make an assumption. Life changes so quickly.

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People say all the time “I don’t know how you do it”. Truth is, I don’t have a choice. This is life for me. For us. Waking up, packing up, loading up, and driving. Only to wait and hope that they may know something new. It has become the norm in my life. Not easy, just normal. Chance was very young when he got his diagnosis. Things have just kept moving after that. Not to say life hasn’t been amazing but it just kept going. Life has a way of doing that. You wake up one day and it’s been four years. Familiar with the app “time hop”? Me too. Just this morning a picture from three years ago came up and it was of Chance. Small, still had baby fat on his cheeks, eating a donut in the hotel room the night before a surgery. It’s weird how that happens. Seeing something and going back in time. I remember each doctors appointment. Each visit, and every surgery. I try to push certain things into the back of my mind. Not as though they haven’t happened, but to make it less heart breaking. With each trip, and each surgery he becomes more agitated, more upset. It gets harder.

 

We are looking at number 15 in the very near future. It was supposed to be on the 29th of December, but it has been postponed until they get the new machines in. To give an update of all recent events, we’ve ran into some other seemingly “small” issues. After several kids in his class came down with the flu, the instant he ran a fever went to the local ER. No flu, no strep, everything was normal. A chest x-ray showed us a small lesion in his lung. Of course the first question was “how did this happen?” followed by “what do we do now?”. The answer was simple, find another doctor to answer them and so, we where on the road again. This time we found ourselves in Pensacola at the Numours Childrens Hospital.

 

 

 

Hands down, the most family oriented hospital I’ve ever been too. We felt safe and comfortable the moment we opened the car door. After meeting the doctor and running several tests, we where told that the “lesion” is easier explained as a hole. We where home bound. Happy, and hopeful that two weeks of medicine and a follow up would show that it is gone or at least shrinking. Fast forward, that’s been a month ago. Just got the call yesterday that it (the hole) is still there. I’m unaware of any details other than “it is still there”. They’ve asked that we come back. I’ll be leaving Sunday afternoon to make the drive back out. Obviously, I’m unsure of where that leaves us.

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Once these new findings are discussed we are still looking at the surgery for the 13th of January. In some way I feel like we’ve made no progress, other times I feel like we’re making leaps and bounds. There are so many new findings in the medical world every day. They have come up with a new treatment option and seem optimistic and genuinely hopeful that this will make a difference. Still no word on a “CURE” but hey, progress is progress. I appreciate all of the love, support, and prayers that have been sent up for Chance, and for us as a family. I ask you to continue your thoughts and prayers as we move forward in our journey.

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Diabetes. Find a cure.

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The greatest man I have ever known spent years suffering and my whole life I’ve wanted to make a difference. One of my greatest dreams is that one day, we will be a world free of diabetes and all of the pain it causes. Tomorrow is World Diabetes Day. If you have something blue, wear and support the cause. If you have a minute and aren’t informed, get informed. We are the future.

Diabetes is the common name for a range of conditions including diabetes mellitus type one and diabetes mellitus type two, diabetes insipidus and gestational diabetes. These are all conditions, which affect how the pancreas (an organ in the digestive system) secretes insulin or how the body reacts to this hormone. Depending on the type and severity, diabetes is controlled by dietary measures, weight loss, oral medication or injected or inhaled insulin. There is a wide range of short and long-term complications of diabetes including foot and eye problems and vascular diseases. It is estimated that one in three residents of the United States will develop diabetes at some point in their life.

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On December 20, 2006, the United Nations (UN) passed a resolution to designate November 14 as World Diabetes Day. The occasion aimed to raise awareness of diabetes, its prevention and complications and the care that people with the condition need. Governments, non-governmental organizations and private businesses are encouraged to increase awareness of the disease, particularly among the general population and the media. World Diabetes Day was first commemorated on November 14, 2007, and is observed annually.

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Our Doctor, Our Angel.

I’ve always believed that God has angels here on earth. Those that watch over us and help when we’re in need. They come in every shape, size, and every color. When other doctors had doubts, when our own family became skeptical, when we where at the end of our rope, I found myself sitting in a waiting room about to meet our angel. There will never be enough tears, enough thanks, enough words, to explain to this man what he has given me. He saved my baby. My own son almost lifeless and this man, with the help of God, gave us the miracle that is Chance.

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I will be forever in his debt. When I try to thank him and show my appreciation he always says “I’m doing what I was called to do.”. He is definitely doing Gods work! I could spend everyday, for the rest of my life thanking him and God, but I will never be able to repay what they have given me. I know The Lord spared my child for a reason. Some days I think “how could I have ever made it this far?” The answer is God. He has held me when I’ve been weak, and he has forgiven me when I’ve been mad. Four years doesn’t seem like a very long time to most people but it’s a lifetime for us. Almost four years ago I should’ve lost my son. With a little faith, and a lot of persistence, the good Lord opened the door. One day might not seem like a lot, but when you’re faced with so much adversity it’s a life changing “one day”.

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I almost missed out on potty training, bed time stories, and baseball in the backyard. I almost missed out on goodnight kisses, and I missed you bear hugs. Everyday for the last four years has been nothing short of a miracle. My son was the first born child, grandchild, and nephew for some. My son was the person who made our lives complete when we didn’t realize it had never been whole.

He is a walking, talking, real life miracle. I know when the time comes he will be completely healed. He will have an amazing testimony and be a testament to my faith. Be grateful, be thankful, and appreciate the little things. Sometimes the “little” things are really the big things. I’m asking that if you’ve read this you say a prayer for him once more. After being called to meet with his doctor, we received some not so exciting news yesterday. The tests will require being put to sleep again. For those still counting, this will be his 13th time put under, his 12th surgery and one more time I beg for an answer.

The will of God will never take you where the grace of God won’t protect you. I’m thanking each of you in advance. Every prayer counts, and each mean so much. From the very bottom of my heart, thank you.